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Pain Awareness IS Suicide Prevention

A truly excellent piece by one of the best sources online of truth about pain & opioids.

EDS and Chronic Pain News & Info

Coincidentally, the month of September is “Pain Awareness Month” and its 2nd week is also “Suicide Prevention Week”.  I believe pain awareness *is* suicide prevention, so here is my yearly post about the unintended serendipity of these two awareness campaigns going on at the same time.

By now we have direct evidence that a lack of pain awareness, as demonstrated by all the politicians and healthcare “experts” enshrining the CDC “guideline” prescription opioid restrictions as law, is leading to suicides of patients with uncontrolled pain.

Can the connection become any more obvious? 

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Addiction Is Not Dependence

PC ruins the lives of millions…thanks a bunch, DSM writers!

EDS and Chronic Pain News & Info

Addiction Is Not Dependencepracticalpainmanagement.com – Aug 2019

In this editorial, Jennifer P. Schneider, MD, PhD, digs into a common—and frustrating—misunderstanding in pain medicine terminology.

FDA approved the buprenorphine implant, branded as Probuphine, in 2016 “for the maintenance treatment of opioid dependence.”

  • Was it approved for the treatment of what we now call Opioid Use Disorder (OUD)?
  • Or was the intent to approve it for physical dependence, a condition found in most opioid-treated chronic pain patients as well as opioid addicts?

It is not clear from the language.  

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More Reasons For Opioid Policy to Shift

Will data & logic ever overcome the zealotry?

EDS and Chronic Pain News & Info

Data From Germany Provide More Reasons For Policy to Shift From Prescription Pills to Harm Reduction – Cato.org – By Jeffrey A. SingerAug 2019

In February of this year, I co-authored a paper in the Journal of Pain Research explaining why there is no correlation between the amount of opioids prescribed and the incidence of non-medical use or prescription pain-reliever use disorder.

See my post on this paper: Non-medical opioid users were not pain patients

Now researchers in Germany have provided more evidence to pour cold water on the idea of any relationship between the volume of opioid prescribing and the incidence of opioid use disorder.

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List of Peer Reviewed Articles on Pain/Opioids

Outstanding list of (true!) info!

EDS and Chronic Pain News & Info

Peer-reviewed articles (2006-2019) on Pain/Opioids by Stefan Kertesz  (Twitter: @StefanKertesz)  June 2019

This is a collection of 26 scientifically correct (not anti-opioid) information that can be used as references to rebut the anti-opioid propaganda. Dr. Kertesz has been a powerful and respected advocate for us for many years and seems to be publishing voluminously.

Many of the articles below I’ve already posted, but here they are in a unified list of publications, most with links, which challenge the anti-opioid zealotry.  

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The Complexity of Pain Care

Another outstanding post that clearly details where the true problem lies –and where the lies are about pain medications.

EDS and Chronic Pain News & Info

Does the HEAL Initiative Research Plan Misunderstand the Complexity of Pain Care? – By Richard A. Lawhern, PhD and Stephen E. Nadeau, MDMay 3, 2019

This informative article carefully, and with published scientific evidence, explains why pain care with prescribed opioids is not the cause of the “opioid crisis”:

With relatively little public fanfare, the US National Institutes of Health (NIH) launched an integrated set of research initiatives, called Helping to End Addiction Long-term (HEAL), one year ago to “provide scientific solutions to the opioid crisis.”

Funding for this initiative was put into place for FY2019 at $502 million, of which approximately $170 million is focused on the discovery of biological markers to characterize acute and chronic pain as well as the development of non-opioid therapies.   

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The Subtle Arrogance of Good Health

Angelika writes powerfully and well of pain and her journey with it.

EDS and Chronic Pain News & Info

The Subtle Arrogance of Good Health- by Angelika Byczkowski (repost)

Until my physical ailments began worsening rapidly in my late 40’s, I was a high achiever, proud of my “kick ass” attitude, thinking I was so competent I could surmount any challenge life threw at me. Life appeared to be straightforward and I didn’t understand why this didn’t seem to be the case for so many other less fortunate folks.

Though I worked hard for my accomplishments and sometimes struggled, there was never a question of ability, never a doubt I’d prevail if I made enough effort. Looking back now, I can see the consistent achievements that came so easily and so early in life instilled in me a subtle subconscious arrogance.

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Death, Life, Lies, and Agony

I ran across a news story this afternoon that spoke of dying cancer patients being denied pain relief –another insane, inconceivable part of the current hysteria about pain meds. It was not news to me by any means. One woman commented on the story by saying that she simply didn’t believe it. It sounded too awful, so she had no intention of admitting it could be true. I find myself half hoping she or one of her loved ones never find out the truth the hard way, half hoping she does, and soon.

I got to watch my mother die in unrelieved, monstrous agony during the first “crisis” of pain meds, when oxycontin first came in the news as being recreationally abused. Mom had leukemia. She should have died 2 ½ years earlier, because she had a very swift & deadly form of leukemia, Acute Myoblastic Leukemia (AML). By a complete fluke, they found the leukemia within a week of her bone marrow spitting out mutated white blood cells and was immediately flung into the hospital for high-dose chemo. She went into remission for a few months. Then relapse and more high-dose chemo. Another few months of remission. This cycle went through 6 iterations; every relapse could’ve been her death sentence. After the sixth round of high-dose chemo, the doctor told her that was it; if/when she relapsed again, the chemo would kill her faster and more horribly than the leukemia would.

The next relapse happened. We gathered to wait the end, which they estimated at about a month; they were good; it was about 5 weeks, by the calendar. The excruciating bone pain of leukemia, which I’ve read feels like every inch of every bone in your body is breaking constantly, without letup, began about 4 weeks before the end. She wanted to die at home; the hospital was several hours away, and my father wanted to be with her the whole time. That’s when the hysteria took over her life, her death, and my sanity. Some addicted recreational user morons were abusing a good prescription medication to get high, so they refused to give my mother anything at all for her monstrous agony as she was dying. They did permit her some children’s liquid Tylenol. Even after she was completely unable to swallow, that was the only thing the home hospice care “doctor” would permit; children’s liquid Tylenol. She. Could. Not. Swallow. Anything.

She died in unspeakable agony. I have no idea how long that month seemed to her; to me, who merely had to watch, it seemed to last years. For her, the utter and complete Hell probably seemed eternal. I’ve tried, in the over 20 years since, to understand how subjecting my beloved mother to Hell on Earth prevented even one recreational drug user from abusing anything. Or from ODing, or anything else. Guess what: I’ve failed at the attempt, and for a very good reason. It didn’t.

Now the opioid hysteria has consumed the entire country and once again, people are dying in needless, insane agony. The hysteria is based purely upon lies, PR, and a small group of phenomenally greedy people who hijacked the CDC process to enrich themselves. People are dying in needless agony, and people living with chronic pain conditions are being forced to live in agony, except for those who are in literally unbearable agony and kill themselves. People are being forced to undergo surgeries with no pain relief afterward other than tylenol or advil, as are people who are desperately injured. These policies are not based upon facts, or science, or medicine. Politicians are screaming about an “epidemic” which does not appear anywhere in the top 12-15 (at least) causes of death nationally. Over 100 times as many people die every day from alcohol, obesity, and tobacco as from opioids (legal and illegal). More people die every day from medical errors. From the flu.

Yet the hysteria rolls on, destroying lives and forcing people into monstrous, tortured deaths. Again, for no reason. The only people who benefit are the liars who benefit from agony and politicians who benefit from claiming they’re “doing something” about a “crisis” or “epidemic” which does not exist. I used to be a decent person who didn’t actually wish pain on others. That’s changed. The horrendous death of my mother, my own experience of decades of abuse for the crime of having an incurable health problem have laid down a baseline of rage that, along with my now-uncontrolled pain, is killing me quickly –though not quickly enough, it often feels. I now wish unrelieved, permanent agony on every one of the venal evil bastards who started this hysteria, every willfully ignorant person who perpetuates it, and even upon people who choose not to believe it’s actually happening because it just seems too awful to admit it’s real. I’m not a good person any more, and I don’t actually care. Because way, way too many good people, starting with my mother, were and are tortured every day simply because they have the temerity and stupidity to be sick, injured, or dying.

I frequently run across people saying the US has the “best health care in the world.” That is also PR bullshit; we’re behind every other developed country & some third world ones in life expectancy, infant mortality, and maternal survival, and we’ve been going downhill for years. A woman has a better chance of surviving childbirth in Costa Rica than in the US. These inconvenient facts also are too icky for people to verify or believe, so they elect to believe the PR bullshit because it’s more comforting –until, of course, their child dies needlessly, or a woman dies needlessly in childbirth, or they get injured or have surgery or are dying and are put through sadistic torture.

To the people who know damned well that I’m not lying; I’m sorry you know that. To the people who choose to remain willfully ignorant…the overwhelming likelihood is, you’ll find out the hard way. Even good, moral, hard-working people get sick and injured. Your turn will probably come. And don’t you dare come crying to me, because you helped perpetuate the torture by your willful ignorance and refusal to do anything but swallow the PR lies whole. I may be dead of rage or ill health or suicide by the time your time comes to be tortured, but even if I’m still alive, I’ll be in Hell ahead of you. Because I’m there already.

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Blaming Rx Pills For Opioid Epidemic Is Fake News

I fear it’s far too late for anything like the truth to ever get in the way of the hysteria that’s been drummed up. I’ve never hoped more fervently to be wrong.

EDS and Chronic Pain News & Info

Blaming Prescription Pain Pills For The Opioid Epidemic Is Fake News
How negligent media have helped inflate a deadly moral panic over prescription opioids and ignored the real sources of addiction while hurting people who live with devastating chronic pain.By Peter Pischke– March 26, 2019

Although opioid-related deaths are driven mainly by heroin and black-market fentanyl, you would not know that from most of the press coverage, which emphasizes pain medication prescribed to patients who become addicted, overdose, and die.

This narrative is “fake news.”

This is the fairytale the media has been pushing for years and years. Just by its incessant repetition, it has ingrained itself in our culture and remains stubbornly immune to facts. 

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The Other Opiate Problem

Truth! A rare thing these days…too bad it isn’t what’s driving all these health denial bills (that is, the output from the crowd that continues to ban pain meds because they want to look like they’re
doing something….whether the “something” makes any sense or not.

EDS and Chronic Pain News & Info

The Other Opiate Problem By Ted Noel, MD – March 2019

Dr. Noel shows us again that overprescribing isn’t the problem – it’s an “overdose crisis” from street drugs, often contaminated with deadly illicit fentanyl.

On February 24, 60 Minutes did a segment …  calling out drug companies for “corrupt,” “immoral,” and “depraved” actions in marketing opioids.

David Kessler, former Commissioner of the FDA said, “There are no studies on the safety or efficacy of opioids for long-term use.”

Case closed! We need to restrict opioids to two or three days at most. Anything longer than that is bad medicine and gets people killed. But…    

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Rx Drugs Aren’t to Blame for Rise in Addiction Deaths

Zyp has another excellent post…showing more than ever that politics & politicians and facts have not even a passing relationship. This proposal by Gillibrand is unconscionable.

EDS and Chronic Pain News & Info

Prescription Drugs Aren’t to Blame for Rise in Addiction Deaths – BloombergBy Ramesh Ponnuru – Mar2019

I’m thrilled to see the true fact about the opioid issue prominent in the headline of a mainstream media publication – especially one directed at financial professionals.

“Patients in pain have become collateral damage in the war on opioids.”

Seeing this fact, which is so often voiced by pain patients, simply stated in this article gives me hope that the public will start to realize that opioids are sometimes very needed and not some sort of “evil” substance that “causes addiction”. 

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